IRISS Podcast: Good governance in data sharing and data linkage for research and evaluation purposes

Description

The evaluation of everyday multi-professional intervention to safeguard and promote the well-being of vulnerable children is limited and restricts both operational planning and professional intervention. The core aim of this programme are to contribute to the development of a platform that will support better understanding of the routes from intervention to outcomes for vulnerable children through utilising administrative datasets and longitudinal research. Graeme Laurie is Professor of Medical Jurisprudence at the University of Edinburgh and Director of the Arts and Humanities Research Council (AHRC) Research Centre for Studies in Intellectual Property and Technology Law. His research interests include the role of law in promoting and regulating science, medicine and technology. He was the Chair of the permanent Ethics and Governance Council of UK Biobank from 2006-2010 and currently the Chair of the Privacy Advisory Committee in Scotland. His presentation title is: "Good governance in data sharing and data linkage for research and evaluation purposes"